LIVING WITH MARFAN'S

This is an information and support group, we hope you will come in and share how this illness has affected your life, family and friends. Post in many of the topics, come and meet others. People with Marfans & other Connective Tissue Disorders have this threating illness, let's share our stories, our thoughts and what affects it has on our everyday lives. I would also like to get to know others that have it as well. This is a group to understand and support everyone who has it.

DO "NOT" TAKE ANYTHING YOU READ FROM THE LIST AS GOOD MEDICAL ADVICE WITHOUT FOLLOWING UP WITH FURTHER RESEARCH AND WITHOUT DISCUSSING YOUR SPECIFIC CASE WITH YOUR PERSONAL PHYSICIAN. WE ARE NOT DOCTORS, WE ARE JUST PEOPLE THAT WOULD LIKE TO SHARE OUR THOUGHTS AND MEET OTHERS THAT HAVE THE SAME ILLNESS AS WE DO.

This isn't a dating group, please no bad language, and respect others. If you can't you will be banned from this group. Please post in the new members intro so that the rest of the group knows your new, and if you can please post your profile so we all know where you are from. If you need anything please feel free to ask me or anyone else here.

Thank you and enjoy the board

Sherry (roshawco@hotmail.com)